While speaking at FutureMed, Sean Ahrens explained his frustrations as a patient suffering from Crohn’s disease and his dissatisfaction with conventional treatments for the condition. To deal with the problem and to help others with Crohn’s or colitis, he created Crohnology, a patient-to-patient information sharing platform.Ahrens explained how the platform fits into the broader context of the “patient revolution,” in which patients are becoming increasingly motivated to become active participants in their healthcare. This revolution is being fueled by mobile tools and social media, he said. And it is becoming necessary, as our healthcare system struggles to deal with rising cost pressures, an uptick in chronic conditions and as doctor–patient interaction becomes increasingly limited. His Crohnology platform enables patients to share health and treatment information with each other, and to monitor the success of their treatments over time. This strategy enables patients to better deal with chronic conditions. Many patients with chronic conditions such as Crohn’s have already turned into self experimenters. Ahrens himself fits into that mold, having intentionally infected himself with parasitic worms to see if they could help manage the disease. During his talk, he explained that he ordered a $3000 dose of the parasitic worms and created Crohnology, in part, to leave a “paper trail” to document the experiment. Once the system was up and running, he used it to track his health over the course of an entire year and was able to gain a number of powerful insights from it. The system is even more powerful when it is opened up to a broader community of patients, he explained. “If we make better tools, we can make better conclusions.” The system can be used to collect many anecdotes from patients. After all, anecdotes are “data that we just haven’t scrubbed well yet,” he said. Ahrens summarized his talk by saying: “The impact of these tools on health is going to be tantamount in degree to the overthrow that social media caused to traditional media.”
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October 30, 2014: Technology Speaks at the Connected Health Symposium
Oct 30, 2014: Engagement is King: Will Data Sharing Concerns Prevent Healthcare Progress?
Oct 29, 2014: UA Employees Honored for Their Work
Oct 29, 2014: Doctors are pushing Google Glass to its engineering limits
Oct 29, 2014: 5 Things We Discovered at Last Week’s Connected Health Symposium
Oct 28, 2014: Connected Health takes the stage at Partners symposium
EMR & EHR
Oct 28, 2014: Five new technologies from the 2014 Connected Health Symposium
Boomer Health Tech Watch
Oct. 29, 2014: Connected Health Takes the Stage at Partners Symposium
Oct 28, 2014: Population Health and Wearables out of a Sci-Fi Film
HealthIT and mHealth
Oct 27, 2014: Pharma-mHealth project looks to move 'beyond the pill'
Oct 24, 2014: Providers and vendors react to Karen DeSalvo's resignation
Oct 24, 2014: Connected Health companies highlight potential solutions, and what needs to be done to fill
Oct 24, 2014: Can doctors make consumers want better health?
Oct 24, 2014: Telehealth adopters could learn some lessons from VA on how to reach patients
Oct 24, 2014: Relaunched health IT company offers MDs chronic condition patient data between visits
Oct 24, 2014: What will it take to spur regular use of wearables? (Hint, better integration)
Oct 23, 2014: What’s holding telemedicine adoption back?
Oct 23, 2014: Viewing patient engagement through the lens of pathology
Oct 23, 2014: Connected Health Symposium focused on mHealth gear
Pathable - Learn. Network. Connect.
If you are attending the Symposium in October, please join our online community on Pathable! Set up your profile and network with Speakers and other attendees!
Damaged Care: The Musical Comedy About Health Care in America, written and performed by Greg LaGana, M.D., and Barry Levy, M.D., highlights issues of concern to healthcare workers, patients, and others.
Greg LaGana, Brad Ross, and Barry Levy, who will be performing Damaged Care: The Musical Comedy About Health Care in America at the Symposium
SENSOREE crafts wearable technology and interactive installations promoting 'extimacy' or externalized intimacy.
Photo by Gayle Laird
Hooked: A Workshop on Building Habit-Forming Products
In an age of ever-increasing distractions, quickly creating customer habits is an important characteristic of successful products.
Join Nir Eyal, author of "Hooked" and Symposium keynoter in this special workshop, Wednesday, October 22, 6-9pm.