Hugo Campos is a thought-leading crusader in the e-Patient movement. He is passionate about participatory medicine, connected health, and patient empowerment through the use of technology. After fainting on a train platform in 2007, two misdiagnoses, and the urgent implant of a cardiac defibrillator, he realized how crucial it is for patients to fully engage in their own health care. Campos advocates for the rights of patients with pacemakers and implantable defibrillators to gain electronic access to the data collected by their devices. “Everything changed,” said Hugo Campos, reflecting on the day in 2007 when he fainted on a subway platform, just miles from home. Two misdiagnoses later plus the urgent implant of a cardiac defibrillator awakened a passion in Campos: to fully engage in his own health care and collaborate with health care providers in any and all decisions - and, in the process, inspire other patients to follow suit. In the months following his device implant surgery, Campos launched a blog, founded the ICD User Group, and embraced a brave new world of patient advocacy through social media. He is passionate about participatory medicine, connected health and patient empowerment through the use of technology. Campos advocates for the rights of patients with pacemakers and implantable defibrillators to gain electronic access to the data collected by their devices. He believes that access is crucial to getting a complete picture of one’s health and can even help spark better health outcomes. In 2011, he shared the story of his journey from patient to consumer of health care to patient rights crusader at TedX Cambridge. He has been interviewed by numerous U.S. and international publications, including the San Francisco Chronicle, the San Jose Mercury News, NPR, Technology Review, Slate, O Estade de S. Paulo and MedGadget Espanol. A native of Rio de Janeiro, Campos moved to the United States in the early ’90s to study graphic arts. He’s worked in many roles at big and small marketing and advertising agencies in the Bay Area and advertising agencies in the Bay area.
Damaged Care: The Musical Comedy About Health Care in America, written and performed by Greg LaGana, M.D., and Barry Levy, M.D., has been presented for the past 18 years to a wide variety of health-care and other organizations. In addition, they have performed Damaged Care frequently in New York, Off-Off-Broadway. It highlights issues of concern to healthcare workers, patients, and others, ranging from erosion of the doctor-patient relationship to the corporationization of health care. Damaged Care has been featured in the New York Times and the Boston Globe, on CNN Headline News and ABC Nightline, and elsewhere.